Sarah's cardiac catheterization is scheduled. We travel to Boise on January 20th, her cath is on the 21st and we stay until our brave girl is ready to come home to us. We could tentatively go earlier that week on the 17th but we have to wait on the ruling of the schedule for the lab on that day. This,of course, is barring any more "drama" from Sarah in the next few weeks. If she becomes heart sick or generally deteriorates faster, our trip to Boise will be expedited and she will have her procedure done sooner.
This in hopes of answers to why our little bug is doing so poorly in life. A bit of me still hopes that it is discovered that her heart is not the reason for all of this illness and just bad luck We've had 'bad luck' in the years passed and have prevailed. Unfortunately, my educated being tells me that I am so wrong. So completely wrong. Lord, how I wish that I was wrong..
Since we came home, Sarah has spent her days on the couch alternating between sleep and watching cartoons. Unfortunately, more sleep than cartoons. Her color can be best described as pale to almost gray. She is oozing blood from her mouth and from around her feeding tube. Her fevers continue to be 101 to almost 104. Tylenol and an occasional Ibuprofen are mainstays on the kitchen counter now. Occasionally, she'll muster enough energy to cough but then quickly goes back to sleep.
I'm terrified.
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