Big sigh.

Today the cardiologist added a new medication to her regime. Lasix.  There are a few reasons that this was added: Sarah went to her pediatrician  today for a discharge follow up appointment.  In almost three weeks time, Sarah has gained two pounds, presumably from fluid.  She is also more mottled than before, "doesn't have knuckles" (swollen) and has steadily looked worse since we came home.

It was explained to us in detail that the Lasix will not be the save all for her.  It is a temporary measure by which we are buying time for final resolution.  The course of treatment will be approximately two weeks and will evaluated then for its work.  In the meantime, the possibility is more than likely to have a cardiac cath performed before the year ends.  With this procedure and with her next open heart surgery, Sarah has a high probability of losing her battle with congenital heart disease.

A truth that scares me to no end. I can't imagine our life without her little smiling face and loving ways.  She has brought so much to our family as our daughter.  One of my hopes in this world is that we have brought to her all of the love, understanding, caring and rejoicing in her life that she's ever needed from her Mommy and Daddy.  For if we have, we have succeeded more in life any could possibly in one lifetime.

We love you baby girl.  Please stay a while longer.